I don’t remember much about Doctor #4 other than he advised me that he had gone to medical school and I had not. I reminded him that I respected his decisions as a doctor but I also believed that there was no person in the world more interested in my well-being than myself. Doctors are doing a job each day and I am just another patient. I was never raised to accept what I was given without doing my own research. I would think a good doctor would appreciate my involvement with my own care.
Sitting in bed one night, I told my husband that I was finished with Crohn’s. My decision was not being treated any longer. I hadn’t been on medications for over a month and seemed to be doing ok. I was drinking a rice milk and banana shake daily and my weight was stable. Honestly, I have no idea how I am so fortunate but maintaining my weight has not been too much of a struggle. The first few months were tough but since then, I’ve done well. My husband talked me into trying ONE more doctor. He called his step-mom and asked her for her opinion on doctors in the area. He explained that he needed a really good one because I was only trying one more doctor before calling it quits. She gave him the name of a practice and her opinion is that any doctor with this group would be amazing.
I called and set up an appointment. I explained the first appointment how rotten of a patient I can be. My new GI specialist recommended Entyvio and asked me to research it and give him an answer in a few weeks. I agreed to starting Entyvio. Doctor #5 seems to order tests without me asking. I almost never have to advocate for myself because he seems to have everything taken care of before it is an issue. I think I may have found a doctor that I can work with for awhile. I hope this is long-term but I really don’t want to get excited yet.